Finns, MD, Joseph “The Civil Rights We Don’t Think About.” New York Times, 8/24/17 Opinion page. Published also on Sunday in the Review Section (8/27/17 page 10.
Most advanced medical directives do not invite input into a variety of situations where a person may not be conscious. The term “persistent vegetative state” which ordinarily suggests no brain activity is not even used in some forms. This article suggests that it is even more complicated and that there are marginal states where a person may be “minimally conscious” and able to express him/herself through a small action such as an eye blink. There are even small indications that the brain can adapt and make repairs.
The article raises many questions about the treatment of these patients and the consideration of their rights to be consulted about their treatment despite limitations in their capacity to respond.
There are many comments responding to this article which may help you think through what choices you would make and whether you would want to anticipate and express your choices in your own directives prior to a medical event. Consider doing the following.
Given the possibility that this could happen to you, what would you want for treatment? Would you want to register your choices ahead of time in your directives? How does your current age figure into your choices? Are there financial concerns? Are there concerns as to how your impairment would impact your family and those you love? Share this article with your family. Ask what they would want for themselves. Then discuss your thoughts and choices.